A collection of resources for patients, families and carers. Hover any tile for a short overview, or click through for the full guide.
Understanding Primary Immunodeficiencies
What PIDs are, how the immune system works, and the most common conditions explained.
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Diagnosis & Treatment
Getting a diagnosis, what the tests mean, and an overview of current treatments including immunoglobulin therapy.
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Patient Support & Daily Living
Practical guidance on infection prevention, mental health, travel, managing daily life, and financial supports for people living with a PID.
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Support & Community
Connect with the Irish and international PID community, find out about IPIA membership, and access global patient resources.
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World PI Week & Awareness
What World PI Week is, the 2026 “We Can’t Wait” campaign, key facts to share, and free campaign resources to download.
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Advocacy & Your Rights
Your rights as a patient in Ireland, accessing specialist care, medication schemes, workplace rights and making a complaint.
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Research, Trials & Associated Conditions
Advances in PID research, newborn screening, how to find clinical trials, and conditions associated with PID.
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Volunteer Fundraising & How to Help
Why your support matters, ways to volunteer with IPIA, fundraising ideas, and how to raise awareness of PID.
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Mental Health Support
Find out more about affordable mental health services available.
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Share Your Story
Your experience helps others feel less alone and shapes the services we build. We’d love to hear from you. Your story can be shared anonymously if you are uncomfortable adding your name.
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“I control the illness – not the other way around”
This anonymous story captures one man’s journey with CVID – a silent battle marked by years of unanswered questions, resilience, and ultimately finding a way…
“How I Got My Home Funding”
Orlagh Woods- CVID my story …. “How I Got My Home Funding” I’m now almost 22 and I’m still figuring things out as I go,…
Oliver and Luke’s journey through their Bone Marrow Transplants at NewCastle-UK
Oliver and Luke’s journey through their Bone Marrow Transplants at NewCastle-UK Final Diagnose : Zinc Transporter Cell Defect My name is Colin and I’m here…
We’d Love Your Feedback
We’d love to hear your thoughts. Your feedback helps us improve our resources for the Irish PID community.
