We are delighted to share some hugely positive news for the Irish primary immunodeficiency community. The HSE has confirmed that newborn screening for severe combined immunodeficiency (SCID) will commence on…
2023: IPOPI Statements on PID Disability Recognition 2026: EU SoHO Implementation
Dear IPIA Members, We warmly encourage all our members to take a few minutes to complete this important survey and make your voice heard. The European Reference Network RITA, which…
Dear IPIA Members As we approach the festive season and the dawn of a new year, we at IPIA want to reach each of you with warmth and gratitude. This…
IPIA, the Irish Primary Immunodeficiency Association, with the objective of raising awareness for those living with PI joined forces with various hospitals to celebrate World Primary Immunodeficiency Week 2023. With…
JOIN US IPIA aims to enhance the quality of life and increase awareness among people with primary immunodeficiency. To further this cause, IPIA is collaborating with St. James Hospital in…
Globally, there are significant disparities in the recognition and support given to patients with primary immunodeficiencies (PIDs). Even when these patients experience serious impairments (which may not always be visible),…
We here at the IPIA – Irish Primary Immunodeficiencies Association (IPIA) are thrilled to share the news that The Minister for Health in Ireland has approved the addition of a…
