Don’t BREXIT on Rare Disease Patients
Primary immunodeficiencies (PID) are disorders in which part of the body’s immune system is missing or does not function normally. A forum entitled ‘Don’t Brexit on rare disease patients – the…
News
IPIA Goals for 2017 – Newsletter
After our last members’ meeting in the Red Cow, we learned that we need to get the charity status for the IPIA. We cannot expand the committee or get any…
PID Classification: A mobile app to diagnose and classify PIDs
The app is available for download in the App Store and Google Play. A newly developed mobile app called Primary Immunodeficiencies App was presented during the 1st Maghreb and 9th Moroccan PID…
Season’s Greetings
This Festive Season ……. is the special smile that winter brings. May yours be filled with this season’s special light.
The Irish Primary Immunodeficiency Association (IPIA) – Committee
The Irish Primary Immunodeficiency Association (IPIA) has been very busy spreading awareness of primary immunodeficiencies (PIDs) through our new website and social media posts. Having reformed in 2016, the association…
The 17th Biennial Meeting of ESID in Barcelona, Spain. 21 – 24 September 2016
held its XIVth Biennial meeting in the fantastic city of Barcelona, Spain, on 21-24 September, in conjunction with the ESID and INGID Congresses. IPIA had the opportunity to attend among…
4th PID Forum on Cross-border Healthcare and PIDs
IPOPI held its 4th PID Forum on Cross-border Healthcare and PIDs on 29th of January in the European Parliament in Brussels, Belgium. This Forum looked into the potential benefits the…
Struggling with HAE
Bettina Carty (42), from Malahide, has told of her struggle with a rare disease that has severely affected her family’s quality of life. She was diagnosed with Hereditary Angioedema (HAE)…
Hereditary Angioedema – the dramatic swelling disorder that can be fatal
Hereditary Angioedema is a rare inherited genetic condition which causes huge swelling on any part of the body, but it is frequently misdiagnosed. by Gerry Fahey. Hereditary Angioedema (HAE) is…
