NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that…
News
IPIA Legal Status
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury,…
Women’s Mini Marathon – 5th June, 2017
COME AND RUN WITH US GET SPONSORS OR SPONSOR OUR RUNNERS Register here Women’s Mini Marathon – 5th June, 2017 Please sponsor our runners All the money collected will be…
IPIA May Newsletter
IPIA, sends out to all our members and contacts the monthly Newsletter, its a way to be in touch with you all and updating everyone of our actions and…
IPIA WPIW 2017 Celebration
IPIA – Irish Primary Immunodeficiency World Primary Immunodeficiency Week – celebration 2017 – IPIA Committee family, Cake Sale with Raffle @ServiceSource Dublin and our Patient Stories, thank you…
Primary Immunodeficiencies Congress – IPIC2017
Primary Immunodeficiencies Congress – IPIC2017 – taking place in the vibrant city of Dubai on 8-10 November 2017. The 2017 meeting focuses on key clinical management developments in the field…
Article on IPOPI Winter e-news
IPIA’s submission in December was successful and we were featured in IPOPI’s winter edition of e-news. The article can be found at IPOPI
Share your story for World Primary Immunodeficiency Week
In accordance with the theme of the 2017 WPIW campaign, we invite you to reflect on your experiences with primary immunodeficiency and access to Immunoglobulin replacement therapies. We will be adding…
Don’t BREXIT on Rare Disease Patients
Primary immunodeficiencies (PID) are disorders in which part of the body’s immune system is missing or does not function normally. A forum entitled ‘Don’t Brexit on rare disease patients – the…
IPIA Goals for 2017 – Newsletter
After our last members’ meeting in the Red Cow, we learned that we need to get the charity status for the IPIA. We cannot expand the committee or get any…
