During World PI Week, IPIA is pleased to share this news from St James’s Hospital. Aoife, the ANP in Immunodeficiency, recently contributed to the IPOPI PID Forum session in Brussels on Growing…
We are delighted to share some hugely positive news for the Irish primary immunodeficiency community. The HSE has confirmed that newborn screening for severe combined immunodeficiency (SCID) will commence on…
2023: IPOPI Statements on PID Disability Recognition 2026: EU SoHO Implementation
Living with a PID during these difficult times At the start of the pandemic, we experienced that all-encompassing feeling of fear. We essentially locked ourselves away and became real-life…
The XV IPOPI Global PID Patients Meeting took place on 24-27 October 2018, in Lisbon, Portugal. IPIA as a National Member Organisation (NMO) had the opportunity to take…
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that…
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury,…
Orlagh Woods- CVID my story I wouldn’t say my diagnoses of CVIID was a ‘normal’ diagnoses. I wasn’t constantly sick when I was young, or on antibiotics every other week.…
