We are delighted to share some hugely positive news for the Irish primary immunodeficiency community. The HSE has confirmed that newborn screening for severe combined immunodeficiency (SCID) will commence on…
2023: IPOPI Statements on PID Disability Recognition 2026: EU SoHO Implementation
Living with a PID during these difficult times At the start of the pandemic, we experienced that all-encompassing feeling of fear. We essentially locked ourselves away and became real-life…
The XV IPOPI Global PID Patients Meeting took place on 24-27 October 2018, in Lisbon, Portugal. IPIA as a National Member Organisation (NMO) had the opportunity to take…
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that…
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury,…
Orlagh Woods- CVID my story I wouldn’t say my diagnoses of CVIID was a ‘normal’ diagnoses. I wasn’t constantly sick when I was young, or on antibiotics every other week.…
