IPIA May Newsletter
IPIA, sends out to all our members and contacts the monthly Newsletter, its a way to be in touch with you all and updating everyone of our actions and…
News
IPIA WPIW 2017 Celebration
IPIA – Irish Primary Immunodeficiency World Primary Immunodeficiency Week – celebration 2017 – IPIA Committee family, Cake Sale with Raffle @ServiceSource Dublin and our Patient Stories, thank you…
Multiple Autoimmune Diseases – Ruben’s age 3 story
Ruben’s Story age 3 Autoimmune Diseases Thanks to Natalie, Ruben’s mother for sharing her little boy Ruben’s age 3 story. Ruben has multiple autoimmune diseases that affect…
YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page.…
Wiskott-Aldrich Syndrome (WAS)
Wiskott-Aldrich Syndrome (WAS) The story of an Irish 5-year patient with WAS a rare genetic disease, a primary immune deficiency disease (PIDD). Keelan was 11 months old when he…
David Syndrome
This is the story of a teenager that lives in Ireland, that was born in a country without the possibility of a diagnose. He was then diagnose with CVID and…
Primary Immunodeficiencies Congress – IPIC2017
Primary Immunodeficiencies Congress – IPIC2017 – taking place in the vibrant city of Dubai on 8-10 November 2017. The 2017 meeting focuses on key clinical management developments in the field…
Article on IPOPI Winter e-news
IPIA’s submission in December was successful and we were featured in IPOPI’s winter edition of e-news. The article can be found at IPOPI
Share your story for World Primary Immunodeficiency Week
In accordance with the theme of the 2017 WPIW campaign, we invite you to reflect on your experiences with primary immunodeficiency and access to Immunoglobulin replacement therapies. We will be adding…
Don’t BREXIT on Rare Disease Patients
Primary immunodeficiencies (PID) are disorders in which part of the body’s immune system is missing or does not function normally. A forum entitled ‘Don’t Brexit on rare disease patients – the…
