New Mental Health Support for You and Your Family
We are pleased to introduce a new resource from IPIA designed to support patients and their families in accessing mental health services more easily. The Mental Health Support Toolkit is…
News
YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page.…
World PI Week 2026: Celebrating Irish Representation and Excellence in Immunodeficiency Care
During World PI Week, IPIA is pleased to share this news from St James’s Hospital. Aoife, the ANP in Immunodeficiency, recently contributed to the IPOPI PID Forum session in Brussels on Growing…
“I control the illness – not the other way around”
This anonymous story captures one man’s journey with CVID – a silent battle marked by years of unanswered questions, resilience, and ultimately finding a way to live fully with PID.…
SCID Added to National Newborn Bloodspot Screening Programme from April 13th
We are delighted to share some hugely positive news for the Irish primary immunodeficiency community. The HSE has confirmed that newborn screening for severe combined immunodeficiency (SCID) will commence on…
Statements sent to Irish Health Minister
2023: IPOPI Statements on PID Disability Recognition 2026: EU SoHO Implementation
Share Your Voice — Take Our Short Patient Survey
Dear IPIA Members, We warmly encourage all our members to take a few minutes to complete this important survey and make your voice heard. The European Reference Network RITA, which…
“IPIA’s New Year Vision: Gratitude, Growth, and Community Engagement”
Dear IPIA Members As we approach the festive season and the dawn of a new year, we at IPIA want to reach each of you with warmth and gratitude. This…
IPIA – World Primary Immunodeficiency Week 2023
IPIA, the Irish Primary Immunodeficiency Association, with the objective of raising awareness for those living with PI joined forces with various hospitals to celebrate World Primary Immunodeficiency Week 2023. With…