We are delighted to share some hugely positive news for the Irish primary immunodeficiency community. The HSE has confirmed that newborn screening for severe combined immunodeficiency (SCID) will commence on…
2023: IPOPI Statements on PID Disability Recognition 2026: EU SoHO Implementation
Dear IPIA Members, We warmly encourage all our members to take a few minutes to complete this important survey and make your voice heard. The European Reference Network RITA, which…
Globally, there are significant disparities in the recognition and support given to patients with primary immunodeficiencies (PIDs). Even when these patients experience serious impairments (which may not always be visible),…
IPIA wishes you a Happy Holiday Season & a Healthy New Year. Read our Newsletter by following the link
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that…
COME AND RUN WITH US GET SPONSORS OR SPONSOR OUR RUNNERS Register here Women’s Mini Marathon – 5th June, 2017 Please sponsor our runners All the money collected will be…
IPIA, sends out to all our members and contacts the monthly Newsletter, its a way to be in touch with you all and updating everyone of our actions and…
The app is available for download in the App Store and Google Play. A newly developed mobile app called Primary Immunodeficiencies App was presented during the 1st Maghreb and 9th Moroccan PID…
